Monthly Archives: October 2019

The Oh Sh*t List!

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The Oh Sh*t List!

Hello friends, I haven’t posted because things have been kind of icky and who wants to read that mess. For those that have been following along my neck surgery is next week. I went for all the pre-op tests yesterday so it feels real at this point. I haven’t been stoic about this situation but I’ve tried to keep the public bitching to a minimum. I’m struggling a bit, I suspect some of my emotions are to be expected. I don’t know if I’ve learned anything through this process but I have made some observations along the way…

I have really good friends. I’m putting together an “Oh Sh*t List” – this will house the names and phone numbers of people that have offered to drive, feed and/or shelter my kids while I’m in the hospital and during recovery. These are people that mean what they say and say what they mean…they will show up if needed. Some of them will show up even if they don’t get a call. I hope you all have friends like this in your lives, I am profoundly grateful for mine.

It isn’t just about meal prep and Muber (Moms that Uber for free) some friends are just there when you need them. Last Saturday I texted a friend around 5pm and asked her if she wanted to go see a local production of Rocky Horror at 9pm. My daughter bailed and I didn’t push it because I thought it might be inappropriate (spoiler: it was COMPLETELY inappropriate).

Me: Any chance you want to go to Rocky Horror tonight?

Lisa: Daughter Bail?

Me: Yup

Lisa: Sure. What are we wearing? Sedate Janets or wild Rockys?

Me: I don’t think I have the wardrobe for either. I can probably put together a party goer outfit…black pants/jacket, shiny shirt (maybe) and an obscene amount of makeup. What have you got?

Lisa: Corset, high heel boots, red wig?

Me: Of course! I need a wig.

An hour goes by as I frantically search through the Halloween boxes looking for anything that will pass for Rocky Horror fabulous. What I find is Thing 1 & Thing 2 toddler costumes which makes me want to smile-cry and sends me to my bedroom closet which leads to…wardrobe disappointment. I did manage to find a cool jacket I purchased in Turino, Italy in 1996 and a hat I wore last year when I went to a party as Captain Obvious.

Me: I look more steampunk middle-aged hooker than Rocky Horror party-goer.

Lisa: Sends me a picture of herself looking fabulous in a zebra inspired pimp hat, gorgeous long deep purple velvet jacket, red wig, corset and boots for days. Too much?

Me: Hells no you look awesome! I put eye shadow on with a Q-tip. I’m not fit to be in your presence.

We had a great time at the show!

 

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Another observation…your family will squeeze every drop out of you until you make them stop.

Yesterday I had to drive to Philly for my pre-admission testing. The drive wasn’t bad and I managed to score street parking which is a bargain. I walked 4 blocks to the first appointment (Cardiologist) then had to get to the remainder of my appointments another 4 blocks away. Naturally it was raining and did I mention I woke up at 2:30 that morning just for giggles. So I was tired, cranky and in considerable pain. I find it ridiculous that people need to jump through these physical hoops for medical procedures to fix an orthopedic issue. The other patients I encountered yesterday were in tremendous pain and having to navigate city blocks and multiple buildings was a lot for their worn out broken bodies. Seemed like an unnecessary obstacle course – put it all in one building preferably on the same floor, oh and GET OFF MY LAWN (just threw that in because I sound like a grumpy old lady).

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Any way after 5 hours of that nonsense I was looking forward to a nap cuddled up with my heating pad. I just got my self nestled in when I hear footsteps approaching my bedroom door…next thing I know my mother is barging into my bedroom.

Mom: Your husband told me you were resting. How are you, are you OK?

Me: I’m in agony mom, I just want to nap. I’ve been up since 2:30 this morning, long day.

Mom: Oh so it hurts, huh.

Me: Yes, yes it does. Is there something you need?

She then rattles off two things that she needs which causes me to get out of bed and go downstairs. I gave my husband strict instructions to lock all the doors from now on and set the alarm.

Naturally Rob and Laura are concerned about me and wondered how they would manage while I’m out. Super woman friend, Vickie, saved the day. She met the family and shadowed me one day this week on outings. Rob & Laura will be well cared for in my absence.

So my – Oh Shit List – is filling me with gratitude. The people I encounter in real life and my cyber friends have been very supportive. Seriously, you need these types of friends in your life.

Pain in the Neck…

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Pain in the Neck…

What’s new my friends, lots happening here. I’ll give it to you in bite size pieces, it’s a lot to chew on.

Rob & Laura Update

My nonagenarian friends are still on this side of the dirt which is a good thing. Dear Rob has had two TIAs (min-strokes) in the past 7 weeks and he is starting to slip cognitively. Laura lost her hearing aid which caused her great frustration until she finally relented and posted bail to get a new one (just under a thousand dollars and that was with the discount, YIKES). There was a lot of shoulder shrugging, exasperated sighs and general annoyance until that got resolved.

Rob’s family is originally from Virginia, last week he told me that when his grandfather was about 8 years old his family had a special guest over for tea, Robert E Lee (yes that one). Then we had an interesting discussion about the confederate flag, Civil War statues and reparations. Oddly enough that afternoon he got a call from a member of his Quaker Community that was eager to change the name of one of their member organizations currently known as the “Overseers”. Rob was hesitant to change the name and he referred to himself as a curmudgeon which is not how I see him at all. He was brought up in a different era, in a geographic area which has a complicated history. A lot of things have changed in his 95 years on the planet and it is refreshing to see someone remain adaptable this late in life.

Caring for them when I’m in physical pain myself is getting exhausting. I know that if I saw one of them about to fall, I would hurl my body in their direction to mitigate the damage likely to my own demise. It would be a visceral reaction and I doubt I could control it. So I have to find them some additional help while I recover, it’s hard to find another me.

Medical Update

I saw a surgeon this past Monday to review my MRI and discuss the options. My options are do nothing and put myself at risk of falling off a metaphorical cliff at some point…potentially losing balance and control of (coughs) bowels and micturition (new Scrabble word). My issue is progressive and will not improve with physical therapy, vitamins, a Chiropractor, voodoo, acupuncture, lavender oil, your cousin Stephanie’s smoothie blend or CBD oil. So surgery it is folks, Anterior Cervical Discectomy and Fusion in case you’re bored and want to Google that mess.  I “get her done” in early November.

I texted my twin brother to discuss it –

Me: Guess who has two thumbs and a new neck in her future – THIS gal.

Him: New neck???

Him: Get a giraffe one and freak people out

And this is one of a thousand reasons that I adore my brother. Then he immediately offered to drive twelve hours and care for me post op. Heart of gold that one.

Marital Bliss

The other night my husband hydroplaned on the way home from Newark, New Jersey Airport. He called me from a sketchy neighborhood to report the news. Bear in mind his car is a Tesla Model S with a Pennsylvania plate, he did not blend in. I told him I would get him so he could take all of his personal effects out of the car and wait to get it towed. It was an hour and a half for me to get there in windy conditions which caused me to have a death grip on the steering wheel for about 3 hours in the middle of the night.

Physically my husband was fine and I am incredibly grateful for that. That said, I’m going to blame his brazen stupidity on the way home on the the two 360’s he did on Route 78 which landed him facing the wrong way on a typically busy highway. He bitched about my driving on the way home at least three times. I was so pissed and in so much physical pain at the time all I could do was grunt, like a bull. Yes, I was in the left lane traveling at a safe speed. It was 1am with little traffic and a wind ban on the turnpike at the time.

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The next day I bitched to my brother about the situation, via text.

Me: Something off about fetching your man from a sketch neighborhood in the middle of the night because he had a car accident AND then listening to him bitch about your driving all the way home while you are in INTENSE pain.

Him: Yikes. How many cars has he messed up and how many have you?

Me: 3 him, me 0

Him: That’s a pretty solid data set to support your argument.

Did I mention that I adore my brother?

 

Kids

Told the kids about my surgery and downplayed it as to not panic them. One kid asks how I am the other takes a different approach…

Kid 2: UGH, my foot fell asleep! (hobbles into kitchen)

Me: Bummer, that’s how my arm feels all the time now.

Kid 2: We get it mom, your arm hurts.

Me: Went to bed so I wouldn’t do anything rash it was 8pm.

For some reason that little exchange reminded me of Erma Bombeck’s tombstone which has “I Told You I Was Sick” on it.

 

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Not sure whose tombstone this is but you get the point.

 

 

 

 

 

 

 

 

Fingers Crossed…

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Fingers Crossed…

Muthafuckah. Got some not great news today…for my regulars you may recall a post from last week when I waxed poetic about my crappy health insurance. I begged my doctor’s office for a script for an MRI but they declined because my insurance (sucks) needed me to go through more hoops first because they’re assholes.

I figured an x-ray would be useless because the pain I have seems nerve related. Pins and needles, like when your foot falls asleep. The foot thing usually passes after a few minutes, the situation I’m dealing with is 24/7.  The pain ranges from a 3 to an 8, it’s never gone completely. I’ve had about six weeks of this now and I’m starting to get cranky. However, the insurance company needs a checklist ticked off before it will pay for an MRI so basically we ALL work for the insurance company now – the doctors, medical billers, patients, hospitals, labs – they own us.

Anyway the planets aligned and I got the referrals, made the appointment, and saw the doctor. The appointment was with a non-surgical Orthopedic at the Rothman Institute. The office ran like a well-oiled machine. They even took an x-ray of my neck for $20. which is the best deal I’ve gotten since well, ever. My PCP wouldn’t send me for an X-Ray because she’s scared of my insurance.

The x-ray didn’t show much (shocking) so I got my script for the MRI. The RI office staff managed to get an authorization code from my cheap ass (yet freakishly expensive) insurance company so I got my MRI a few days ago. This morning I got a call around 9:15am from an unknown number so I let it go to voicemail. It was the Orthopedic doctor. Well, that was unexpected. I called the office told them I would be available after 12:30. I got another call from the doctor at 12:32, this is highly unusual. Doctors calling as soon as they get the results to discuss it with you…

Doc: Hello, I wanted to let you know I got the MRI and it isn’t terrible.

Me: (nervous laughter) Great, not terrible is good, maybe.

Doc: We compared this MRI to the one you had in 2010 and the same area is involved (cervical).

Me: I’m glad you were able to hunt that down.

Doc: I’m recommending that you see a surgeon.

Me: Oh.

Doc: There’s some compression around the spine and some fluid. (barely audible) Myelomalacia

Me: Mya-what?

Doc: Myelomalacia, don’t Google it.

Me: Of course I’m going to Google it, you just told me not to.

He then proceeded to name some doctors that are spinal surgeons. I got off the phone and promptly cried for 45 seconds. Then I started Googling, then I took a walk because I can’t do anything else. He told me to hold off on physical therapy until I see the surgeon. Oddly enough I had a physical therapy consult scheduled for this afternoon.

I talked to my husband, I talked to a friend, I talked to God and my dog. I made the appointment for Monday which is a miracle in itself. Hopefully, I’ll have more information and the start of a game plan this time next week.

I put my gym membership on hold. That was when it hit me, shit got real. Exercise has been a physical and mental release for me for 30 years. Now I have restricted exercise (walking) and constant pain, it’s not an ideal combination. I’m trying to not think about it too much until my next appointment, easier said than done. Fingers crossed…

 

Red, White & Blue (privilege)

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Red, White & Blue (privilege)

Red, White and Blue, the colors of Old Glory. America is such a mess right now. It takes determined concentration to not get sucked into the propaganda on either side. My country has turned into a dysfunctional family gathering where some guests have clearly been over-served and the quiet relations are hiding in the corner trying to remain invisible. Meanwhile the host is getting dinner on the table three hours late lamenting about the state of the world and how things would be so much better if we turned back the clock to 1957. Better for whom?

Precious few are willing to listen to people with a different political view because they believe their side is morally superior. There are sides now, definitive lines in the sand, us versus them, red against blue. We need to be one country again. Country before party and all that. What scares me the most though, is that this type of divisive ideology is simultaneously happening all over the world.

The colors of America’s flag represent different ideas to me now. Please know this is my version of stereotypes of extremists on each end. I know that there are rational, compassionate Republicans and Democrats. I still believe we have a lot of overlapping common ground we just need to commit to finding it.

Red (privilege) – The ability to actively and passionately care for an unborn fetus while simultaneously being OK with brown kids getting separated from their families for an undefined amount of time at border crossings. God-loving Christians who would rather spend money beefing up the military then covering entitlement programs like WIC, Welfare or Food Stamps. Who will financially support those fetuses that grow into children that need food, clothing, shelter and a stable home? While hand-wringing over the unborn, the reds turn a callous eye away from the epidemic of gun violence that claim thousands of lives each year (approximately 11,000 in 2017 according to the BBC). WWJD indeed?

White (privilege) – Imagine if President Obama made public statements encouraging Russia, Ukraine and China to dig up dirt on a political rival during a campaign. Oh what’s that, you can’t imagine a world where that’s possible. OK then, imagine if Obama was accused of a dozen or so variations of sexual assault. Better yet, switch out Obama for Trump in the infamous Access Hollywood tape and then imagine him getting elected after that…would never happen. Yes my friends that is (rich) white privilege.

Blue (privilege) – You claim to be the party of compassion, pro choice and ultimate Democracy yet you stop talking to people if they disagree with your political views. You want to rid the world of bullies and tyrants yet you go full on beast mode if someone questions your vaccination choices. Live and let live unless someone is living in a way that you find offensive. You need to give people a chance to catch up with each new iteration of socially acceptable behavior – the rules change daily. Better yet, allow space for people to have a different belief. Some religions don’t support homosexual life styles. Yeah, it’s sad. I’m here to tell you that I can eat some Chick-fil-A without being a LGBTQ hater. As Freud once said, sometimes a nugget is just a nugget, not a political statement. I can’t pull up a manifesto for each corporate conglomerate before I order lunch. Everyone is a bully if they aren’t your brand of “woke”. Full stop.

The point is there are extremists on both sides – two wings on the same bird. The bird flies better if the wings are working together. If the wings are constantly flapping in opposite directions it’s a death spiral. I’m dizzy from the constant, chaotic circling and that hard crash landing is getting closer.

I hope we can get back to a place where we place country over party. Where morals matter all the time, not just when it fits a specific narrative. I want decent, compassionate, intelligent leadership. I want well thought out policies, not impulse driven, reactionary decisions via Twitter promulgated by a constant stream of political pundits shouting over each other on red and blue networks. The people, you and me, we are the only ones that can fix this mess. The politicians sold us out decades ago, it’s all on us now.