Category Archives: Health Care

Let The Games Begin!

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Let The Games Begin!

Let the games begin! I give a chin up nod and raise a plastic glass to my reflection in the bathroom mirror before starting the colon prep that will literally own my ass for the next 18 hours. This may be the most 2020 thing I do all year and doesn’t it feel appropriate.

I was supposed to do this after I turned 50 a couple of years ago. I wasn’t in a rush, further delayed by my father’s death. He had an emergency colonoscopy, got perforated and subsequently died after a couple of weeks in the hospital. You can understand my hesitation. 

At this year’s physical I was reminded again that I was overdue so I decided to put my big girl panties on (or is it Depends?) and request the appointment. For this GI practice you mail in the paperwork and they call you with dates a few weeks after your information is received. They offered me a date in September so I took it. Turns out my colonoscopy happens to be on the anniversary of my father’s death. I’m trying not to think of that, 2020 is one spooky bitch.

The prep started 5 days ago with a low fiber/low roughage diet. For the past 7 months I’ve been focused on eating better – whole grains, fruits, vegetables – all that is out the window as I welcome back a bland low fiber diet of white bread and pasta with no raw fruits or veggies. I thought I would enjoy the diet relapse more but not so much. 

One thing I was looking forward to was a guilt free night of no cooking and sequestering myself in my bedroom after 4:30pm, some well earned “me time”. I had a busy day shopping for clients in the morning and taking my mother to a medical appointment in the afternoon. 

Outings with my mother always lack efficiency. You plan to do one thing but 6 more things get added to the list with some unexpected twists along the way. Sometimes it’s my mother’s doing and sometimes it’s the Universe just f*cking with me. It reminds me of the children’s book – If You Give a Pig a Pancake by Laura Numeroff, here’s an excerpt –

If you give a pig a pancake, she’ll want some syrup to go with it. You’ll give her some of your favourite maple syrup, and she’ll probably get all sticky, so she’ll want to take a bath. She’ll ask you for some bubbles. When you give her the bubbles..

Here’s the version for my mom, who goes by Nannie:

If you take Nannie to the bank she will also want to go to the food store. While in the food store she will curse loudly because they don’t have the right Swifter pads. Then she will leave her cane in the shopping cart while complaining that the stores near her house aren’t big enough. When you leave the store she will want to get something to eat, after she eats you will take her to the doctor. While walking to the doctor from the car she will realize she left her mask at Starbucks and you will have to beg the receptionist for a mask…on the way home from the doctor you will get detoured for twenty minutes due to an accident…

Seriously, all that sh*t happened. Back to my prep – as I mentioned I was looking forward to a little me time. Clearly nothing exotic just not cooking or cleaning up after people for an evening would be a treat. At 4:30pm I announced that I was going upstairs. The hubs looked at me and said something about dinner…I may have blinked really slow. I reminded him that I was taking the night off for medicinal purposes and I wished him well. Of course this would be the week that he has a huge project on his plate but really figure it out people. I texted him an hour later to remind him to make sure our daughter eats.

I could hear the discussion taking place regarding dinner – the guys were set with chicken parm subs, the girl was requesting Mexican take out. I got a text from my daughter requesting help, I told her to come upstairs. She had to place the order by phone and apparently that is more scary than hairy spiders for her. I talked her through it while she stood in the doorway of my bathroom and I sat on the toilet.

Daughter: Mom what’s the name of that Mexican place I like?

Me: Aztlan (pronounced Azz Land because WTF not)

Daughter: What’s the name of those nachos I like?

Me: Aztlan Nachos

15 minutes later I get a call from my son who was sent out to pick up the nachos.

Son: Mom what’s the name of the place with the nachos?

Me: Aztlan

Son: What’s the address? Is it on the same street with the tailor and the church…

Me: I don’t know honey can you Google it, I gotta go (still on the toilet).

The day before the colonoscopy is a liquid diet. I had jello, chicken broth, tea, water, more water and for a change, water. The prep includes a concoction which tastes like rancid cough syrup mixed with dish soap. You dilute that with water and when you finish that you drink more water and then you explode, maybe

Before I finished drinking the first round of 48 ounces (second round is the morning of the procedure) I got a headache and the chills, apparently this happens. It passed after about an hour. While I was Googling side effects, I read that orange jello is a no-no which is most unfortunate because I ate several bowls of the stuff. I wish I was joking. The instructions from the GI office state you should not consume red or purple jello or beverages. Nothing about orange so I’m hoping this doesn’t derail me. 

Speaking of “go”, the prep is effective. All the things you hear about the prep are true – vile, disgusting, rancid, rank, gross, gnarly (this is taking on an 80s Valley Girl theme, like Oh My God) Satan’s cocktail, poo primer, make up your own name it’s fun (sad, sad, fun). Anyway I was able to drink it and not vomit so yay me! The fireworks started within an hour…more like water works. I don’t speak for everyone but somehow my ass turned into a faucet. Even more odd was the faint chicken smell, guess it was the broth I had. Pretty much an all liquid event with varying shades of yellow, gray and eventually clear. This apparently is the goal.

The next morning I stepped on the scale because who doesn’t want to weigh themselves after 14 hours off liquid evacuation. I lost 1.8 pounds. I realize some people sneeze that in a day but for me this is big news. It takes me weeks of clean eating and consistent exercise to lose that. And yes, I suspect it will be back up tomorrow, shhhh, let me have this moment.

A few hours later….

The hubs dropped me off at the appointment and I gave him instructions to come back in two hours. I was fairly certain he’d be back. There’s only so much take out they can eat and those people (my family) won’t even wash fruit FFS. 

I registered and was directed to my waiting stall. I was instructed to keep on a bra and socks. I told the nurse I hope a camisole is acceptable because I haven’t worn a real bra since March (and I’m never going back to that titty prison). While in queue for a procedure room I had to use the bathroom TWICE. It was a bit of a spectacle, I had to navigate an IV pole while holding my gown closed, tricky business. 

It was finally my time and I was wheeled into the room.I just got oxygen clips in my nose when, uh-oh, I had to go again. I said Jack (nurse) I need to get untethered so I don’t sh*t the bed, he was quick about it. Took care of business, met my doc and went night-night. 

I woke up to hearing I didn’t have any polyps which was good news. My doctor spoke to me about how fabulous my colon was and how I did a great job with prep (no mention of orange jello, phew). Unless things change, I don’t have to do this for 10 years.

So here are the takeaways:

I think the low fiber/low roughage diet for 5 days prior helped with the prep. I had minimal cramping and bloating was eased as soon things got moving. 

The nausea passed soon after I finished the solution. During the second round I would take a long swig of solution and then have a small sip of water to ease the after taste. 

I had a headache and chills each time I drank the solution, that’s just how it is for some people. I was allowed to take Tylenol which helped. 

I got cottonelle wet wipes to help with the burning sensation (did I mention the ring of fire? Just imagine you have 1,000 papercuts THERE, yup that’s what it feels like)

Go light on the food after your colonoscopy. I got a little too enthusiastic at dinner and I think it was too much after the day’s events.

Colonoscopies are recommended starting at age 45 for African Americans, 50 for most and younger for those that have a close family member that had colon cancer.

A Three-Banded Armadillo & A Flamingo…

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A Three-Banded Armadillo & A Flamingo…

Hey friends, it’s been a hot minute since I’ve written. I’m sorry I’ve been so absent, I’ve started and stopped writing about a dozen times in the past two months. I tend to go in when things gets rough…deploy the shield and turn into a three-banded armadillo, tuck and roll. Yup, that’s what I do.

Photo Ark: Southern Three-Banded Armadillo | National Geographic ...

You’ve been in my thoughts though and I wanted to give you an update for those that have followed me a while…

Rob passed away in May. It was just a couple of days after his 96th birthday. In early May, Rob went to the hospital for an issue and it was discovered he had Co-vid. Due to the virus he could not get the necessary treatment, it was indeed a death sentence. His family fought like hell for 10 days to get him home so he could die there instead of alone at the hospital. I don’t know how many strings his son had to pull to make that happen. I’m guessing that the family contribution of 50+ years of community service helped get that monumental task completed.

The day he came home I was dropping off groceries for the family. I volunteered to do their grocery shopping because I wanted to limit their exposure. It was the day before Rob’s 96th birthday. I am grateful he was able to die at home with a handful of loved ones at his bed and many more tuned in remotely for a final round of camp fire songs and cherished memories relived out loud.

Rob, like many that have died of the virus, deserves a big celebration. His life was full of community service, education, love, tolerance, patience, an abundance of birds and laughter. Sadly that celebration is on hold until it is safe to gather in a large group. My only regret is that I didn’t ask him to appear to me in the after-life as a flamingo. He would make an outstanding flamingo.

Flamingo Metal Sign Wall Décor

 

A three-banded armadillo and a flamingo walk into a bar….kidding, bars are closed silly. Wear a mask, wash your hands, be kind and if you can’t be kind, be quiet.

No Net

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No Net

I haven’t wanted to write for months. I’m having a difficult time coming to terms with the enormity of this situation. I force myself to do the self care things that have helped  me to remain sober for more than 36 years…I eat well, exercise, start my day with gratitude, pray…yet, I find myself fighting that gravitational pull. That invisible, powerful force that wants to take me down. I don’t want to die, I just don’t want to do anything.

Early on I acknowledged to myself that I wasn’t going to Marie Kondo my way through this mess. I may get around to tidying up my desk of shame in the kitchen if the urge hits. I will not be learning a new language, sewing masks (they would suck), or (sigh) writing the great American novel (or the mediocre pandemic novel).

I’m shadowboxing depression and my usual moves are tired, weak.

I go through the motions anyway, a weird automatic setting that kicks in like a worn out, haggard looking Stepford Wife. I feed my family (a seemingly endless loop of meals), I do the laundry, I get my ass outside to walk, I check in on my elderly clients and my mom, try to find the humor…I’m struggling, I mean, aren’t we all?

Mind you, I have no reason to complain. I live in a spacious house with people that are not abusive or threatening. Sure we get on each other’s nerves but I’m not in danger here. My awareness that other people do not have a safe space haunts me. Women are getting beaten by abusive partners, children live in fear of their parents, many people are hungry, cold and without adequate shelter and I feel powerless.

I worry about marginalized people, the ones that were barely making it before the virus. Minorities afraid to wear masks in public because that may be more dangerous then not wearing one…people living on the street, those scraping by paycheck to paycheck, the uninsured, the ones with no safety net whatsoever…I used to be a member of that club.

It sounds great to call grocery store workers heroes. The truth is most of them work to survive, they don’t want to stock shelves, run the register or listen to you bitch about a lack of mangoes, they don’t have a viable alternative. They prefer to live indoors with electricity and running water.

Prior to this sh*t storm it was not unusual for me to be at several grocery/specialty stores in a week, sometimes several in a day. I would take my elderly clients out food shopping, to the butcher, etc, then I would go shopping for my family. If someone wanted the Brooklyn Bread, I would drive 15 minutes to that store….croissants, no problem, 12 minutes in the opposite direction. Need Italian cookies (the real ones with an almond base and pignoli nuts), I know a place (stated in a NY accent with exaggerated hand gestures). Back in the carefree days of early March, I was the step & fetch it gal for my family for each whim and craving. That horse has left the barn and in the immortal words of Ke$ha, I ain’t coming back.

Tik Tok Bitches

By the second week of March I realized that exposing myself to multiple stores in different geographic areas was high risk. So I hunkered down to one local store, once a week (or less) and made due with what I could get. I also shop for my mother and my elderly clients, I look like a hoarder whenever I go. I tried the online shopping with dismal results so this is my new normal.

I happen to know one of the workers at my store. Lindsay (not her real name) is a friend of a friend. Sadly our mutual friend passed away a few years ago and I was the one that broke the news to her. We have bonded over our grief and are on friendly terms. I always look for her when I shop, let’s face it, that’s pretty much the only real life social interaction I get outside of my home.

I was shopping two Fridays before Easter, April 3rd. My intention was to get enough for three households to make it past Easter. It was a monster order. My large cart was overflowing and I required two carts to get everything to my car. Lindsay bagged my groceries and helped me take groceries to my car that day. I was careful, I had a mask on even though it wasn’t required yet. I have a habit of bringing hand sanitizer in my pocket when I go into the store so I can put it on before I touch my door handles. I took those precautions.

As we were loading my car, Lindsay talked about wanting a mask. I happened to have an extra one in my car. Nothing exotic, just a basic dust mask. A different friend of a friend gifted me with a 4 pack of them about a month ago. I offered one to Lindsay and she accepted with gratitude. That was the last time I saw Lindsay face to face.

On April 15th I got a Facebook message from Lindsay. I commented that I missed her in the store when I went on April 14th. Turns out Lindsay and her partner both tested positive for COVID 19, they were 8 days into isolation. She didn’t go into too many details just that it was awful and scary. I offered to shop for them, cook, anything…she declined said they were covered for now.

I haven’t heard from her in a week.

 

 

If you have the means and feel inclined, I urge you to donate to the charity of your choice during this time. Here are links to two charities that are dear to me –

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Fed Up!

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Fed Up!

Everyone is in full on crazy mode right now. Hanukkah and Christmas are just around the corner, weather has been a complete mess for a large swath of the population and I still need to figure what to get my Brother In-law.  Since my surgery last month I have become pretty good at saying – “nope, not doing it” and Christmas is no exception.

I have gotten gifts for my kids, the hubs and my nieces and nephew…I’m just not stretching much beyond that this year. I may attempt to make biscotti, maybe not. I tried to bake something last week and it made me awful to be around. I go into a weird rage when I attempt to bake, it isn’t pretty.

Clearly I’m not the only one feeling the pressure, a local mom posted this picture in a Facebook Group –

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Sure, it’s all fun and games until little Timmy goes to school and starts discussing how Snowball landed on his dinner plate and it takes a few beats for his first grade teacher to realize that mom has probably been hitting the eggnog a little too hard this year. Or perhaps the offspring of this stressed out parent is observant and wonders why Snowball’s right leg is longer than his left (inquisitive little monster). Then dad has to come up with some convincing backstory on the fly about a sledding accident in 2004. I tend not to lie simply because it’s too exhausting.

It’s not just the holidays making me nuts, it’s the recovery from my ACDF. The other night I went to a women’s networking holiday party. It was great to get out and feel human again. Bonus I ate a meal that I didn’t shop for, cook, serve or clean up – that is always a plus. I got a bit panicked when it was time to leave because a snow squall had come through and I was afraid of slipping on ice and snow. My friend graciously walked me to my car as I held on to her arm (just in case). Then I had a white-knuckle ride home on black ice. I am usually excellent about driving in the snow – since the surgery I’m afraid of getting into a fender bender or skidding off the road. I’m sure this will calm down as I get further into recovery but right now I’m feeling fragile and it effects me in ways that never have before. I don’t like this new version of chicken-shit me, not one bit.

I went back to a modified work schedule a couple of weeks ago. The modifications mean I do not drive Rob and Laura around anymore, not for the foreseeable future. Instead I visit them at home, run solo errands and do some cooking for them. This has been working out except one day last week when Laura forgot I wasn’t driving them anymore. You haven’t lived until a 93 year old woman is pissed off because you won’t take her to the laundromat. Luckily a driver was coming the next day to tackle that task.

One of the new chores is to assist Rob with the spraying of the fruitcakes. I didn’t know this was a thing until about a month ago. Rob made 22 fruitcake loaves and one wreath back in November. Since then, he sprays the bounty every Wednesday. The loaves each get 5 sprays of brandy and then they are sealed in a Ziploc bag and placed in an airtight container. The wreath gets about a dozen sprays. I’m fairly certain the wreath is an alcoholic, it’s a broken mess. I didn’t get the specifics but I did see the results and I explained what a smash cake is to my friends. We have deemed the boozy treat a smash wreath and that should totally be a thing.

This week was special because it was time to remove the cheesecloth. Pieces of liquored up fruit were falling off like a drunken avalanche. Rob (a non-drinker) was scooping up the bits like a kid who just busted up a Pinata. I’ve never seen a 95 year old move with such cat like reflexes. After a few fistfuls his aim was off on the spraying and the right side of my body smelled like a bar at 11:59pm on New Year’s Eve. Luckily I made it home without getting pulled over. I may need to change my sobriety date.

On the plus side, I still have my sense of humor and luckily I’m not the only one….this gem popped up on Facebook the other day. I like this an unreasonable amount. Happy-whatever-you-celebrate! 80406706_1768755406589367_978716565929197568_n.jpg

 

Vigilance, My Constant Companion

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Vigilance, My Constant Companion

Well hello blog friends. I’ve been pretty quiet since I got back from the hospital 12 days ago. Don’t let that fool you, my thoughts have taken on a squirrelish  pattern, darting between cars on a 6 lane highway during rush hour.

Hard to know how successful the surgery was at this point. The surgeon proclaimed it “perfect” so I’m counting on that to be accurate. My zombie arm has improved greatly – now I’m afraid of accidentally undoing all the good the surgery did. Plus I have weird sensations in other areas. Hoping it’s just my nerves coming down from some fairly traumatic events.

Recovery from surgery is a strange place to be in mentally. I expected the physical pitfalls – pain, medication issues, potential blood clots, physical restrictions, general discomfort and overall ickiness. I was not fully prepared for the anxiety, mood swings and FFS tears (who am I).

Before I give you a glimpse into my particular rabbit hole of recovery I need to first state the obvious…I’m very fortunate. I am relatively young and healthy. My recovery is projected to be months and isn’t terminal. The surgery I had was to correct a problem and prevent further damage. It was to relieve the chronic, relatively short term pain (months, not years) I experienced and hopefully prevent further damage.

This isn’t terminal cancer or some chronic debilitating disease that I have to manage for however much time I have left on this planet. I am mindful of this and deeply grateful. I also recognize that the fickle finger of fate has the option to change her mind at any point, even the best strategic plans and intentions can implode at any moment. I’m aware of the transient nature of life and my blessings are abundant.

Some things I have observed about myself…

I’m pretty much a rule player. Sure I may wax poetic about what a rebel I am but when the rubber meets the road, I’m a by the book gal. I want to follow discharge directions to the letter, sadly the letter is fuzzy.

Having more questions and curiosity than the discharge papers accounted for, I took to Google to quench my thirst for knowledge. Probably not ideal. There is a wide range of opposing opinions by medical professionals in regard to Anterior Cervical Discectomy & Fusion.

To brace or not to brace? Collar or no collar? Movement or none? When can I drive? When can I safely load the bottom rack of the dishwasher or put a fitted sheet on the bed? I feel safe pouring dry kibble into the dog food bowl but filling the water bowl seems like risky business. These are the activities that stump me daily.

I’ve already contacted the surgeon’s office about a potential blood clot and difficulty swallowing (which to be fair, are valid concerns and warranted calls) I draw the line when asking about specific mundane household chores. I see the surgeon next week for my first follow up visit since my surgery, I’m making a list.

I’m afraid of breaking myself. My biggest hurdle right now is the mental bandwidth I’ve handed over to fear of botching this surgery. Some is valid, some is unlikely. I find myself in a place of fear more often than I anticipated. It takes months, perhaps up to a year for bones to fuse. During this time of healing I will need to be mindful of what I do and do not do physically. Which activities are considered high risk and should be avoided? Vigilance will be my constant companion for the foreseeable future.

Some people don’t appreciate gruesome neck scars. I was able to drive yesterday for the first time since the surgery. My first errands out included dropping the kids off at school and getting some thank you gifts for my friends. My scar is supposed to air out so I didn’t cover it. There was a definite look of disgust on one clerks face when I came back into the store to borrow a pen. Her exact words were – “Take this pen, we have 100 of them. Now get out.”

Do you have a surgical recovery story? Any pro tips? Feel free to comment with your words of wisdom.

 

 

Fixed It

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Fixed It

Well hello my blogging friends. I am happy to report that I got through my ACDF with all parts in tact and a few extra…two discs replaced using a combo of my bone and donor bone and a nifty titanium plate with 6 or 8 screws. I feel frickan’ fantastic and I’m not high right now. Got out of surgery a little over 24 hours ago and I am amazed at how good I feel. I suspect there will be some pitfalls along the way but wow what a difference. My right arm is my arm again, not some alien appendage that causes me pain 24/7. I forgot how good it feels to not feel bad all the time. It’s like a rebirth. Anyway, that stuff is nice but boring so let’s get on to the funny stuff before I go night-night.

The hubs and I got caught in traffic on the way to the surgery check in. The traffic was so bad I grabbed my backpack and walked the remaining 4 blocks. I did that to get there on time only to encounter an empty desk upon arrival. That was unsettling but I had faith in the surgeon so I didn’t walk out the door. The vacancy lasted long enough for me to call a general service number to confirm the room number, yup I was at the right place. So much for my efforts for being on time. I just got seated in registration when the hubs came through the door.

After about half an hour I was sent to hospital purgatory. It’s a holding pen before you get to the specialized OR area. This was a fun place. It was set up like an ER with curtains for privacy between beds. The first lady took basic information when she asked me my weight I told the hubs to cover his ears. She said I could whisper it to her, so I did. He said she’s probably lying and sonofabee I was but only by like 2 or 3 pounds and I rounded down so shoot me.

Anyway, I happened to get my period that morning because WTF not. I am 51 years old folks this should be in the rear view mirror and yet here we are…I mention this to another nurse who had the task of rubbing me down with antiseptic cloths (this would be the worst porn scene ever). Anyway I mentioned the menses to my new friend and she gave me mesh underwear and a sanitary pad that could double as a mattress. It was YUGE. I kind of felt bad for the pad, there was no way it was going to live up to it’s potential. I’m at the trickle stage this pad was worthy of postpartum tide. Oh and on one trip to the bathroom part of my gown went into the bowl so I had to explain that mess and get a new gown, at least I entertained the staff.

It was clear that I had at least an hour to go or so in purgatory so I encouraged the hubs to go get something to eat. He was already on Yelp looking for options, he didn’t fight me when I made the suggestion. Mind you it was noon and I didn’t  have anything to eat or drink since Midnight. I would have given my still tingling zombie arm for a coffee at that point. Half an hour after the hubs leaves…

Me: If you send me food pics I will cut you.

Hubs: I literally had my finger on the send button,

Me: Get yo fine azz back here…it’s moving day.

Half an hour later I was sent to OR prep and he was sent somewhere else, a waiting room.

Hubs: I miss u

Hubs: OK, just remembered u don’t have ur phone, so I’m talking to myself.

Once I got settled into my room I sent him home to be with our kids. My friend Kristy dropped by to bring them dinner – a chicken parm sub and a Brooklyn Pizza from our favorite local place.  I also got soup from Lisa, my Rocky Horror partner. And Amy just went full on ridiculous she made soup, cookies, orzo salad and salmon….oh and my friend Iris made me a spectacular chicken soup with matzo balls and magic. I am blessed beyond measure friends. I hope you all have people like this in your life.

Anyway back to the hospital stay. People joke all the time that hospitals are no place to rest and damn that is so true. I had a roommate Joan, 83 years old. She was in so much pain they had to take her for an MRI to see what was going on. Her surgery was way more complicated than mine and I felt guilty for feeling so good. We chatted a good chunk of the night because neither one of us could sleep, too much beeping, plugs coming undone, the compression sock alarm that nearly gave me a heart attack. Every time I needed to pee I had to be untethered by a nurse, it was an ordeal.

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Rare pic of me wasted.

The lab lady came in at 4am to take blood as if that’s a normal thing…we can’t wait until 8am for this? My surgeon came by for a visit at 5:57am, he must sleep 4 hours a night, max. I was glad to see him though he said the surgery went “perfect” and I believed him because my arm was feeling awesome. I got to shake his hand and thank him and ask weird questions about bone grafts. I won’t bore you with those details let’s just say I have some cadaver parts and I’m totally cool with that. I plan to donate my body to science when I die so perhaps I will be able to return the favor.

So in-between the chats with Joan, vitals being checked, alarms going off and the 4am Vampire – the man across the hall from my room threw several tantrums throughout the night. I heard him being abusive to staff, screaming without regard for any of the other patients and just all out acting like an enraged toddler, it was ridiculous. He was at least 20 years younger than Joan who was in extreme pain and was pleasant with everyone she came in contact with – this guy was the opposite. Needless to say I didn’t sleep much.

I got discharged at 11am and I walked out the door, no wheelchair. First stop was a Starbucks to supplement the tepid weak coffee I got with breakfast. There was a lot of food for breakfast, I only ate the grits (Paul I’m sure you would make better grits). Got a Chai and walked the three blocks to the car, it felt good to be outside. Things were going pretty good, until they weren’t.

About 20 minutes into a 45 minute drive I had to vomit. Told the hubs to pull over, he didn’t. Instead he handed me a Mutt Mit (dog poop bag) and I used that, tied the bag to avoid spills and repeated the process two more times. The fact that he had the foresight to think of this raised his stock considerably. We handled that like champs all the while doing 60MPH headed home like we practiced it. Now I’m waiting for my neck to be sore from that mess so tomorrow may be a rough day.

Anyway, it’s been smooth sailing since then. Fingers crossed we stay the course.

 

 

The Oh Sh*t List!

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The Oh Sh*t List!

Hello friends, I haven’t posted because things have been kind of icky and who wants to read that mess. For those that have been following along my neck surgery is next week. I went for all the pre-op tests yesterday so it feels real at this point. I haven’t been stoic about this situation but I’ve tried to keep the public bitching to a minimum. I’m struggling a bit, I suspect some of my emotions are to be expected. I don’t know if I’ve learned anything through this process but I have made some observations along the way…

I have really good friends. I’m putting together an “Oh Sh*t List” – this will house the names and phone numbers of people that have offered to drive, feed and/or shelter my kids while I’m in the hospital and during recovery. These are people that mean what they say and say what they mean…they will show up if needed. Some of them will show up even if they don’t get a call. I hope you all have friends like this in your lives, I am profoundly grateful for mine.

It isn’t just about meal prep and Muber (Moms that Uber for free) some friends are just there when you need them. Last Saturday I texted a friend around 5pm and asked her if she wanted to go see a local production of Rocky Horror at 9pm. My daughter bailed and I didn’t push it because I thought it might be inappropriate (spoiler: it was COMPLETELY inappropriate).

Me: Any chance you want to go to Rocky Horror tonight?

Lisa: Daughter Bail?

Me: Yup

Lisa: Sure. What are we wearing? Sedate Janets or wild Rockys?

Me: I don’t think I have the wardrobe for either. I can probably put together a party goer outfit…black pants/jacket, shiny shirt (maybe) and an obscene amount of makeup. What have you got?

Lisa: Corset, high heel boots, red wig?

Me: Of course! I need a wig.

An hour goes by as I frantically search through the Halloween boxes looking for anything that will pass for Rocky Horror fabulous. What I find is Thing 1 & Thing 2 toddler costumes which makes me want to smile-cry and sends me to my bedroom closet which leads to…wardrobe disappointment. I did manage to find a cool jacket I purchased in Turino, Italy in 1996 and a hat I wore last year when I went to a party as Captain Obvious.

Me: I look more steampunk middle-aged hooker than Rocky Horror party-goer.

Lisa: Sends me a picture of herself looking fabulous in a zebra inspired pimp hat, gorgeous long deep purple velvet jacket, red wig, corset and boots for days. Too much?

Me: Hells no you look awesome! I put eye shadow on with a Q-tip. I’m not fit to be in your presence.

We had a great time at the show!

 

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Another observation…your family will squeeze every drop out of you until you make them stop.

Yesterday I had to drive to Philly for my pre-admission testing. The drive wasn’t bad and I managed to score street parking which is a bargain. I walked 4 blocks to the first appointment (Cardiologist) then had to get to the remainder of my appointments another 4 blocks away. Naturally it was raining and did I mention I woke up at 2:30 that morning just for giggles. So I was tired, cranky and in considerable pain. I find it ridiculous that people need to jump through these physical hoops for medical procedures to fix an orthopedic issue. The other patients I encountered yesterday were in tremendous pain and having to navigate city blocks and multiple buildings was a lot for their worn out broken bodies. Seemed like an unnecessary obstacle course – put it all in one building preferably on the same floor, oh and GET OFF MY LAWN (just threw that in because I sound like a grumpy old lady).

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Any way after 5 hours of that nonsense I was looking forward to a nap cuddled up with my heating pad. I just got my self nestled in when I hear footsteps approaching my bedroom door…next thing I know my mother is barging into my bedroom.

Mom: Your husband told me you were resting. How are you, are you OK?

Me: I’m in agony mom, I just want to nap. I’ve been up since 2:30 this morning, long day.

Mom: Oh so it hurts, huh.

Me: Yes, yes it does. Is there something you need?

She then rattles off two things that she needs which causes me to get out of bed and go downstairs. I gave my husband strict instructions to lock all the doors from now on and set the alarm.

Naturally Rob and Laura are concerned about me and wondered how they would manage while I’m out. Super woman friend, Vickie, saved the day. She met the family and shadowed me one day this week on outings. Rob & Laura will be well cared for in my absence.

So my – Oh Shit List – is filling me with gratitude. The people I encounter in real life and my cyber friends have been very supportive. Seriously, you need these types of friends in your life.

Fingers Crossed…

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Fingers Crossed…

Muthafuckah. Got some not great news today…for my regulars you may recall a post from last week when I waxed poetic about my crappy health insurance. I begged my doctor’s office for a script for an MRI but they declined because my insurance (sucks) needed me to go through more hoops first because they’re assholes.

I figured an x-ray would be useless because the pain I have seems nerve related. Pins and needles, like when your foot falls asleep. The foot thing usually passes after a few minutes, the situation I’m dealing with is 24/7.  The pain ranges from a 3 to an 8, it’s never gone completely. I’ve had about six weeks of this now and I’m starting to get cranky. However, the insurance company needs a checklist ticked off before it will pay for an MRI so basically we ALL work for the insurance company now – the doctors, medical billers, patients, hospitals, labs – they own us.

Anyway the planets aligned and I got the referrals, made the appointment, and saw the doctor. The appointment was with a non-surgical Orthopedic at the Rothman Institute. The office ran like a well-oiled machine. They even took an x-ray of my neck for $20. which is the best deal I’ve gotten since well, ever. My PCP wouldn’t send me for an X-Ray because she’s scared of my insurance.

The x-ray didn’t show much (shocking) so I got my script for the MRI. The RI office staff managed to get an authorization code from my cheap ass (yet freakishly expensive) insurance company so I got my MRI a few days ago. This morning I got a call around 9:15am from an unknown number so I let it go to voicemail. It was the Orthopedic doctor. Well, that was unexpected. I called the office told them I would be available after 12:30. I got another call from the doctor at 12:32, this is highly unusual. Doctors calling as soon as they get the results to discuss it with you…

Doc: Hello, I wanted to let you know I got the MRI and it isn’t terrible.

Me: (nervous laughter) Great, not terrible is good, maybe.

Doc: We compared this MRI to the one you had in 2010 and the same area is involved (cervical).

Me: I’m glad you were able to hunt that down.

Doc: I’m recommending that you see a surgeon.

Me: Oh.

Doc: There’s some compression around the spine and some fluid. (barely audible) Myelomalacia

Me: Mya-what?

Doc: Myelomalacia, don’t Google it.

Me: Of course I’m going to Google it, you just told me not to.

He then proceeded to name some doctors that are spinal surgeons. I got off the phone and promptly cried for 45 seconds. Then I started Googling, then I took a walk because I can’t do anything else. He told me to hold off on physical therapy until I see the surgeon. Oddly enough I had a physical therapy consult scheduled for this afternoon.

I talked to my husband, I talked to a friend, I talked to God and my dog. I made the appointment for Monday which is a miracle in itself. Hopefully, I’ll have more information and the start of a game plan this time next week.

I put my gym membership on hold. That was when it hit me, shit got real. Exercise has been a physical and mental release for me for 30 years. Now I have restricted exercise (walking) and constant pain, it’s not an ideal combination. I’m trying to not think about it too much until my next appointment, easier said than done. Fingers crossed…

 

It’s All About the Money Honey

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It’s All About the Money Honey

This week has been a painful reminder of how incredibly messed up healthcare is in America. I’ve had an annoying issue that’s been shadowing me for about a month – near constant tingling/numbness in my right arm. I waited a couple of weeks to see a doctor because I thought it might resolve on it’s own, it hasn’t. So I made an appointment and saw my doc – she put me on steroids to see if inflammation was the cause.

I was a little freaked out to take the steroids because I’ve heard some rough stuff but it was a low dose for six days so I tried it. Nothing miraculous happened, the pain and numbness were dulled a bit but not gone. A day after my last dose I had extreme pain so I called the doctors office asking for next steps. No one called me back. I called the next day and got Honied and Sweetied by the nurse.

Nurse: Hold on hon, let me check….(hears keyboard clicking…)

Me: The pain is fairly significant and it’s constant, can we possibly streamline this process?

Nurse: Well Sweetie your doctor is giving you a referral to the Rothman Institute.

Me: OK, will I have a diagnostic test done before then to pin point the problem?

Nurse: No Honey. Go to the Orthopedic doctor first.

So I call the Orthopedic doctor. I’m fortunate they have a cancellation so I don’t have to wait a month or more to get in. The intake person tells me I will see a non-surgical doctor and asks me if I have had any x-rays or an MRI. I call back my doctor’s office…

Me: Can I get an MRI or some other diagnostic testing prior to the Orthopedic appointment so it is a more productive appointment?

Nurse: Pffffft. I doubt it.

Me: Can you ask?

Nurse: (Clearly annoyed) This is what your doctor has suggested.

Me: Yes, I understand that. I’m just in a lot of discomfort and I want to streamline the process if at all possible.

Nurse: (sighs loudly) I’ll put a note in for the doctor.

Next day…nurse calls we play phone tag 4 times before we connect then the call gets disconnected….

Nurse: Doctor says your other option is 4 to 8 weeks of physical therapy, then reconsider MRI, otherwise, insurance likely won’t cover.

Me: So physical therapy for a problem that hasn’t been properly diagnosed yet because an accurate diagnostic test hasn’t been done because the insurance won’t pay….I’ll stick with the Orthopedic referral, thanks.

Once again the death of common sense has been verified. I am nothing but a walking widget to these people…another name in the computer that stumbled off the factory floor and had the nerve to ask relevant questions. I’m sure this nurse started her career with the sincere desire to help people, now she is relegated to towing the corporate line for a variety of insurance companies. The doctor may sign her paychecks but they all work for the insurers now and it’s been that way a long time. This is the insurance we pay $20K in premiums for each year because my husband and I are both self-employed.

In other news, I went for a consultation for a cosmetic procedure today – blepharoplasty (under eye bags). Met with the doctor, scheduled the procedure and poof have an appointment for early November. Easy Peasy!

What’s the difference here folks, cash. The almighty dollar y’all so if you are willing to pay cash you can get your tummy tucked, boobs/eyes/ass lifted, nipped, tucked and fat sucked with barely any questions asked.  GAWD forbid you have a real problem then you will jump through hoops of fire to get the coverage you actually paid for, healthcare in America, it’s just swell.

 

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Actual photo of me trying to get the healthcare coverage I already bought. (Pssst, not really I got the image form Pinterest)